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You'd probably never know this woman's had a debilitating disease since birth.

Cassandra Trimnell was diagnosed with sickle cell anemia in 1987 when she was just a baby.

She inherited the gene that causes this disease from both of her parents, meaning she has sickle cell type SS.This means she can experience the worst symptoms — including fatigue, extreme joint pain, anemia, and infections — at a higher rate.  

She's not the only one with sickle cell in her family either. Her younger sister Joanne was also born with it, and two of her other siblings have the trait, which means they don't have the disease but can pass it along to their children.

While she never had that shocking moment of hearing her diagnosis for the first time, she always knew she was different.

Cassandra as a child. Photo via Cassandra Trimnell.

When she started school, she had to constantly drink water and stay inside during recess when it was too hot or too cold to avoid pain episodes. Kids would occasionally ask her if she was contagious. It all made her feel incredibly isolated.

She was always a lot smaller and skinnier than the other kids at school, which meant that others often treated her like she was more fragile.

As a kid she also regularly felt sick and was in the hospital on a monthly basis. This often affected what she desperately wanted to do. For example, she was in a choir that was going on tour for which she had been planning and practicing for months. However, on the day they were supposed to leave, Trimnell was in the hospital.

Cassandra (left) with her sister Joanna. Photo via Cassandra Trimnell.

However, her mom was wonderful about helping her cope with the disease, and most importantly, she didn't treat her like she was going to break.

"You’re not like everybody else," Trimnell recalls her mom saying. "You need to look out for yourself. Look out for your health."

One aspect of sickle cell anemia that makes it such a difficult disease is that its symptoms aren't always visible to others.

"It’s like you’re fighting these invisible demons that nobody sees," Trimnell says. "Some of my earliest childhood memories are being hunched over in excruciating pain thinking I was going to die," she says.

This lack of visible "proof" that sickle cell disease is debilitating is one of the more frustrating aspects of living with it. You might see someone with sickle cell going through a pain crisis, but from the outside it just looks like they're playing a game on their phone. That's actually a coping method.

"We’re on our phones playing games because we’re distracting ourselves from the pain," Trimnell says.

Cassandra in the hospital with her husband. Photo via Cassandra Trimnell.

While it is the most common genetic condition around the world, it's rarer in the United States, which makes it even less visible.

And the current lack of understanding about symptoms and treatment among the general publiccan go from irritating to downright scary when someone with the disease goes to the hospital. Sometimes emergency room doctors don't believe sickle cell patients are in as much pain as they are because they seem to be handling it OK, which in turn affects their care.

"If doctors don’t think your pain is serious, then you won’t get treated seriously," Trimnell explains.

This is why Trimnell is now committed to raising sickle cell awareness.

Trimnell and members of Sickle Cell 101 at the 2017 Health and Resource Expo at Lincoln Elementary. Photo via Cassandra Trimnell.

She launched her nonprofit, Sickle Cell 101, in 2013. The idea came from a college biology course and an Instagram account.

When her biology class got around to talking about blood disorders like sickle cell, she was shocked by how unfamiliar her classmates were with it.

So shedecided to get creativeto give people a better understanding of the disease.

She began posting a number of facts on Instagram and received an overwhelming positive response.

#SickleCell red blood cells can squeeze through most blood vessels! #SickleCellEducation

A post shared by Sickle Cell 101 (@sicklecell101) on

Just like that, she was on the path to raising awareness full time. And today, her nonprofit specializes in educating the sickle cell community as well as the general public on various aspects of the disease.

The goal is to help people with the disease be treated with more mindfulness, especially if they're children, which is how Trimnell should've been treated when she was younger.

Trimnell knows she's not like everyone else, but now she realizes it's better to talk openly about her disease rather than hide it.

Cassandra (left) with her sister Joanne. Photo via Cassandra Trimnell.

When she was little, she didn't mention it to friends because she didn't want to be pitied or treated like a patient. Today, she's constantly sharing the challenges sickle cell patients face so that kids growing up with the disease remember they're not alone.

She sends the same message to parents who've recently found out their child has sickle cell anemia.

"People have sickle cell all over the world. You won’t lead a normal life, but it’s not a death sentence."

The best way to live with sickle cell disease is to stay healthy, positive, and turn to the support of groups like Sickle Cell 101 and Sickle Cell Warriors.

For those who don't have the disease, the best way to support those who do is to read up on it.  The more people who understand it, the less isolated those living with it will feel.

Family

'It's not Little Sun': Mom admits she's having trouble pronouncing her newborn's name

It was fine 'til other people tried to say it and now she's confused.

via JustusMoms29/TikTok (used with permission)

Justus Stroup is starting to realize her baby's name isn't that common.

One of the many surprises that come with parenthood is how the world reacts to your child’s name. It’s less of a surprise if your child has a common name like John, Mohammed, or Lisa. But if you give your child a non-traditional name that’s gender-neutral, you’re going to throw a lot of folks off-guard and mispronunciations are going to be an issue.

This exact situation happened with TikTok user Justus Stroup, who recently had her second child, but there’s a twist: she isn’t quite sure how to pronounce her child’s name either. "I may have named my daughter a name I can't even pronounce," Stroup opens the video. "Now, I think I can pronounce it, but I've told a couple of people her name and there are two people who thought I said the same exact thing. So, I don't know that I know how to [pronounce] her name correctly."


@justusmoms29

Just when you think you name your child something normal! #2under2mom #postpartum #newborn #momsoftiktok #uniquenames #babyname #babygirl #sahm #momhumor

Stroup’s daughter is named Sutton and the big problem is how people around her pronounce the Ts. Stroup tends to gloss over the Ts, so it sounds like Suh-en. However, some people go hard on the Ts and call her “Sut-ton.”

"I'm not gonna enunciate the 'Ts' like that. It drives me absolutely nuts," she noted in her TikTok video. "I told a friend her name one time, and she goes, 'Oh, that's cute.' And then she repeated the name back to me and I was like, 'No, that is not what I said.'"

Stroup also had a problem with her 2-year-old son’s speech therapist, who thought the baby’s name was Sun and that there weren’t any Ts in the name at all. "My speech therapist, when I corrected her and spelled it out, she goes, 'You know, living out in California, I have friends who named their kids River and Ocean, so I didn't think it was that far off.'"

Stroup told People that she got the name from a TV show called “The Lying Game,” which she used to watch in high school. "Truthfully, this was never a name on my list before finding out I was pregnant with a girl, but after finding out the gender, it was a name I mentioned and my husband fell in love with," says Stroup. "I still love the name. I honestly thought I was picking a strong yet still unique name. I still find it to be a pretty name, and I love that it is gender neutral as those are the type of names I love for girls."

The mother could choose the name because her husband named their son Greyson.



The commenters thought Stroup should tell people it’s Sutton, pronounced like a button. “I hear it correctly! Sutton like Button. I would pronounce it like you, too!” Amanda wrote.

“My daughter’s name is Sutton. I say it the same way as you. When people struggle with her name, I say it’s Button but with a S. That normally immediately gets them to pronounce it correctly,” Megan added.

After the video went viral, Stroup heard from people named Hunter and Peyton, who are dealing with a similar situation. “I've also noticed the two most common names who run into the same issue are Hunter (people pronouncing it as Hunner or HUNT-ER) and Payton (pronounced Pey-Ton or Pey-tin, most prefer it as Pey-tin),” she told Upworthy.

“Another person commented saying her name is Susan and people always think it is Season or Steven,” Stroup told Upworthy. After having her second child, she learned that people mix up even the simplest names. “No name is safe at this point,” she joked.

The whole situation has Stroup rethinking how she pronounces her daughter’s name. Hopefully, she got some advance on how to tell people how to pronounce it, or else she’ll have years of correcting people in front of her. "Good lord, I did not think this was going to be my issue with this name," she said.

This article originally appeared last year.

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Health

Woman uses her super sense of smell to help scientists detect Parkinson's in minutes

Joy Milne first smelled the disease on her husband 10 years before his diagnosis.

Photo by Fulvio Ciccolo on Unsplash

There is currently no definitive test to detect Parkinson's.

We don’t always choose our gifts. Joy Milne’s superpower, one she inherited from her mother’s side of the family, was having a highly acute sense of smell. Milne might have never used her olfactory talent as a force for good had it not been for her late husband, Les Milne.

According to NPR, Les and Joy met in their teens and it was love at first sniff. "He had a lovely male musk smell. He really did," she told NPR.

After many years of a happy marriage, Joy noticed her husband, then in his 30s, had developed an “overpowering sort of nasty yeast smell.” The running joke-slash-complaint was that Les “wasn’t washing enough.”

Eventually Les’ scent wouldn’t be the only thing to change. Joy told NPR that her once funny, thoughtful husband completely transformed, becoming “moody,” irritable, and even aggressive. He wouldn’t receive a proper Parkinson’s diagnosis until the age of 45.

Joy didn’t suspect that she could somehow detect the disease until going with Les to a Parkinson’s support group and noticing that the same distinctive smell seemed to fill the room. After sharing the discovery with her husband, she knew she had to take action.

Joy began working with researchers at University of Edinburgh and through a series of experiments confirmed that she could sniff out Parkinson’s with flawless accuracy. Now scientists have created a breakthrough method of detection based on Joy’s special ability.

parkinsons

This new test works in mere minutes.

Twitter

Under the belief that Parkinson’s affects a person’s odor due to a chemical change in sebum, or skin oil, doctors simply run a cotton ball along the back of the neck, then identify specific molecules linked to the neurological condition. TheBBC reported that the skin-swab test is 95% accurate under laboratory conditions.

Though this medical advancement is still in its early stages, the discovery is promising. There is currently no definitive test to get a Parkinson’s diagnosis and, as Joy explained to Sky News, it is often not identified until patients have “over 50% of neuronal damage.”

Les died in 2015 at 65. An earlier diagnosis might have provided the opportunity to improve his lifestyle, which could possibly have offset symptoms. “It has been found that exercise and change of diet can make a phenomenal difference,” Joy told The Guardian.

She also recalled to BBC News that it would have meant having an explanation for the mood swings, not to mention traveling, spending more time with family… essentially, making the most out of what time was left. That perhaps is the biggest saving grace an early diagnosis could offer.

Les’ final wish before he passed was for Joy to continue using her gift, assuring that "it will make a difference." Joy is keeping that promise and currently extending her “super smeller” power to help smell other diseases like cancer and tuberculosis (TB).

While she notes that her superpower does make outings like shopping a “curse sometimes,” she also sees it as a “benefit” allowing her to help others.


This article originally appeared three years ago.

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How often should you wash your sheets? Experts settle the debate once and for all.

People have all kinds of opinions on this.

Kampus Production/Canva

How often do you change your sheets?

If you were to ask a random group of people, "How often do you wash your sheets?" you'd likely get drastically different answers. There are the "Every single Sunday without fail" folks, the "Who on Earth washes their sheets weekly?!?" people and everyone in between.

According to a survey of 1,000 Americans conducted by Mattress Advisor, the average time between sheet changings or washings in the U.S. is 24 days—or every 3 1/2 weeks, approximately. The same survey revealed that 35 days is the average interval at which unwashed sheets are "gross."

Some of you are cringing at those stats while others are thinking, "That sounds about right." But how often should you wash your sheets, according to experts?

Hint: It's a lot more frequent than 24 days.

While there is no definitive number of days or weeks, most experts recommend swapping out used sheets for clean ones every week or two.

Dermatologist Alok Vij, MD told Cleveland Clinic that people should wash their sheets at least every two weeks, but probably more often if you have pets, live in a hot climate, sweat a lot, are recovering from illness, have allergies or asthma or if you sleep naked.

We shed dead skin all the time, and friction helps those dead skin cells slough off, so imagine what's happening every time you roll over and your skin rubs on the sheets. It's normal to sweat in your sleep, too, so that's also getting on your sheets. And then there's dander and dust mites and dirt that we carry around on us just from living in the world, all combining to make for pretty dirty sheets in a fairly short period of time, even if they look "clean."

Maybe if you shower before bed and always wear clean pajamas you could get by with a two-week sheet swap cycle, but weekly sheet cleaning seems to be the general consensus among the experts. The New York Times consulted five books about laundry and cleaning habits, and once a week was what they all recommend.

Sorry, once-a-monthers. You may want to step up your sheet game a bit.

What about the rest of your bedding? Blankets and comforters and whatnot?

Sleep.com recommends washing your duvet cover once a week, but this depends on whether you use a top sheet. Somewhere between the Gen X and Millennial eras, young folks stopped being about the top sheet life, just using their duvet with no top sheet. If that's you, wash that baby once a week. If you do use a top sheet, you can go a couple weeks longer on the duvet cover.

For blankets and comforters and duvet inserts, Sleep.com says every 3 months. And for decorative blankets and quilts that you don't really use, once a year washing will suffice.

What about pillows? Pillowcases should go in with the weekly sheet washing, but pillows themselves should be washed every 3 to 6 months. Washing pillows can be a pain, and if you don't do it right, you can end up with a lumpy pillow, but it's a good idea because between your sweat, saliva and skin cells, pillows can start harboring bacteria.

Finally, how about the mattress itself? Home influencers on TikTok can often be seen stripping their beds, sprinkling their mattress with baking soda, brushing it into the mattress fibers and then vacuuming it all out. Architectural Digest says the longer you leave baking soda on the mattress, the better—at least a few hours, but preferably overnight. Some people add a few drops of essential oil to the baking soda for some extra yummy smell.

If that all sounds like way too much work, maybe just start with the sheets. Pick a day of the week and make it your sheet washing day. You might find that climbing into a clean, fresh set of sheets more often is a nice way to feel pampered without a whole lot of effort.


This article originally appeared last year.

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Mic'd-up hockey goalie's hilarious self-talk during games has people in stitches

Nick the Goalie's monologuing is just delightful.

@nickthegoalie_1/TikTok

You don't have to watch hockey to enjoy Nick the Goalie's running commentary.

Goalkeepers and goaltenders in all kinds of sports play a unique role on a team. While other players have to communicate and strategize with one another as they play, a goalie just has one job—keep the ball/puck/etc. out of the goal. It's a hugely important job, but pretty straightforward.

When their team is on the other side of a field or rink, goalies watch and wait. Since their teammates know and trust that they're watching the action, they don't really have to interact with anyone most of the time. And while they can't totally zone out, they have all kinds of time to themselves while the action is happening far away.

Have you ever seen what happens when a person—especially someone who likes to talk—has a whole lot of time to themselves and no one to talk to?

Meet Nick Weston, who is giving everyone a glimpse into a world most of us only watch from afar and never get to hear. Weston is an amateur hockey player from Vancouver, Canada, who has become a TikTok sensation with his mic'd-up goalie videos under his nickname, Nick the Goalie.

Do you remember the snowboarding 4-year-old in a dinosaur costume who coined the phrase "I'm a stuck-a-saurus!" and won hearts with her adorably entertaining monologuing? Nick the Goalie is like that, only as a grown man playing a team sport.

People love Nick the Goalie's wholesome self-talk as he performs his goalie duties with gusto. (Though he often wears a Vancouver Canucks jersey, he doesn't play for a National Hockey League team. As he explained to CTV, he gets brought in to play goaltender on various local league teams.)

His videos have even been shared by ESPN and the NHL, and the comments on his videos are as fabulous as his running commentary.

Watch:

@nickthegoalie_1

Mine! #hockey #goalie #nhl #hockeyboys

"This is how I imagine a golden retriever's internal monologue. He's SO excited, I love it," wrote one commenter on Reddit.

"Only reason I gravitated towards the goalie position, other than my hatred of running, was my need to constantly sing to myself. Can relate so hard," wrote another.

A whole thread of soccer, field hockey, and lacrosse goalkeepers, as well as baseball catchers and outfielders, confirmed that this is exactly what they do—monologue, monologue, monologue.

@nickthegoalie_1

I COULD’VE DROPPED MY CROISSANT 🥐 #hockey #goalie #nhl #hockeyboys

It's hard not to smile at the the wholesomeness and hilarity of his self-talk. The singing, the squealing, the trash talk to no one in particular—it's all just so delightful.

@nickthegoalie_1

This video is a lot to take in #hockey #goalie #hockeyboys #nhl

Even people who aren't that into ice hockey are commenting with how much they enjoy his videos. As one person wrote, "Ok fine I’ll watch sports if I can get this insider commentary for every game."

So much fun. Recently, Weston has been using his social media fame to raise money for the Canucks Autism Network in addition to sharing the sport he loves. As of 2024, over 1.1 million has been raised.

Keep following Nick the Goalie on TikTok, YouTube, or Instagram.


This article originally appeared three years ago.

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Man finds a mysterious egg in London, incubates it, and launches a Pixar-worthy journey of love

When Riyadh found an abandoned egg, he had no idea that it would change his life.

Courtesy of Riyadh Khalaf/Instagram (used with permission)

When Riyadh found an egg, he had no idea how much it would change his life.

The story of Riyadh and Spike starts like the opening to a children's book: "One day, a man walking through the city spotted a lone egg where an egg should not have been…" And between that beginning and the story's mostly sweet ending is a beautiful journey of curiosity, care, and connection that has captivated people all over the world.

Irish author Riyadh Khalaf was out walking in London when he came upon an egg. "We just found what we think is a duck egg," Riyadh says in a video showing the milky white egg sitting in a pile of dirt. "Just sitting here on its own. No nest. No other eggs."

Thinking there was no way it was going to survive on its own, Riyadh put the egg in a paper cup cushioned with a napkin and took it home to incubate it. He said he used to breed chickens and pigeons, so he had some experience with birds. Knowing the egg could survive for a while in a dormant state, he ordered an incubator on Amazon, and the journey to see if the egg was viable began.

Even though it was "just an egg," Riyadh quickly became attached, and once it showed signs of life he took on the role of "duck dad." Every day, the egg showed a drastic change in development, and Riyadh's giddy joy at each new discovery—movement, a discernible eye, a beak outline—was palpable. He devoured information on ducks to learn as much as he could about the baby he was (hopefully) about to hatch and care for.

Finally, 28 days later, the shell of the egg began to crack. "I could see this very clear outline of the most gorgeous little round bill," Riyadh said—confirmation that it was, indeed, a duck as he had suspected. But duckling hatching is a process, and one they have to do it on their own. Ducklings instinctively know to turn the egg as it hatches so that the umbilical cord detaches, and the whole process can take up to 48 hours. Riyadh watched and monitored until he finally fell asleep, but at 4:51am, 29 hours after the egg had started to hatch, he awakened to the sound of tweets.

"There was just this little wet alien staring back at me," he said. "It was love at first sight."

Riyadh named his rescue duckling Spike. Once Spike was ready to leave the incubator, he moved into "Duckingham Palace," a setup with all of the things he would need to grow into a healthy, self-sufficient duck—including things that contribute to his mental health. (Apparently ducklings can die from poor mental health, which can happen when they don't have other ducks to interact with—who knew?)

"My son shall not only survive, but he shall thrive!" declared the proud papa.

Riyadh knew it would be impossible for Spike to not imprint on him somewhat, but he didn't want him to see him as his mother. Riyadh set up mirrors so that Spike could see another duckling (even though it was just himself) and used a surrogate stuffed duck to teach him how to do things like eat food with his beak. He used a duck whistle and hid his face from Spike while feeding him, and he played duck sounds on his computer to accustom Spike to the sounds of his species.

"It's just such a fulfilling process to watch a small being learn," said Riyadh.

As Spike grew, Riyadh took him to the park to get him accustomed to the outdoors and gave him opportunities to swim in a small bath. He learned to forage and do all the things a duck needs to do. Throughout, Riyadh made sure that Spike was getting the proper balanced nutrition he needed as well. Check this out:


After 89 days, the day finally came for Spike to leave Riyadh's care and be integrated into a community of his kind "to learn how to properly be a duck." A rehabilitation center welcomed him in and he joined a flock in an open-air facility where he would be able to choose whether to stay or to leave once he became accustomed to flying. Within a few weeks of being at the rehabilitation center, his signature mallard colors developed, marking his transition from adolescence. Spike has been thriving with his flock, and Riyadh was even able to share video of his first flight.

This is the where "And they all lived happily ever after" would be a fitting end to the story, but unfortunately, Spike and his fowl friends are living in trying times. The rehabilitation center was notified by the U.K. government in December of 2024 that the duck flock needed to be kept indoors for the time being to protect them from a bird flu outbreak and keep it from spreading.

Building an entire building for a flock of ducks is not a simple or cheap task, so Riyadh called on his community of "daunties" and "duncles" who had been following Spike's story to help with a fundraiser to build a "Duckingham Palace" for the whole flock. Riyadh's followers quickly raised over £11,000, which made a huge difference for the center's owners to be able to protect Spike and his friends.

All in all, Riyadh and Spike's story is a testament to what can happen when people genuinely care. If Riyadh had left that egg where it was, it may not have made it. If Spike hadn't survived and been moved to the rehab center, the ducks there would be in greater danger of the bird flu due to the costs of building an indoor shelter for them. Despite the ongoing bird flu threat, the story really does have a happy ending.

Thank to Riyadh for sharing Spike's journey with us. (You can follow Riyadh on Instagram here.)


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